patient experience
Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic Pain
Kathryn A. Birnie, Tieghan Killackey, Gillian Backlinp, Frank Gavinp, Christin...
Parent Engagement in a COVID-19 Cohort Study of Children and Families: Successes, Challenges and Next Steps
Shelley M. Vanderhout, Catherine S. Birken, Peter D. Wong, Shannon Weirp, Jennifer Batten...
Building Capacity for Patient-Oriented Research: Utilizing Decision Aids to Translate Evidence into Practice, Policy and Outcomes
Monica Parry, Dawn P. Richards, David WellsP, Adhiyat NajamP, Salima Hemani an...
Evaluation of Experiences and Impact of Patient Engagement on e-Health Research: A Qualitative Study
Rachel Y. Pan*, Kendra Zhang*, Arani Sivakumar, Dorothy Choi, Angel H. Wang, Pauline Wijeyesekera
In Pursuit of Better Care Transitions: Lessons Learned from a Co-Designed Project
Kerry Kuluski, Ida McLaughlinp, Lisa Bennettp, Gordon MacGregorp, L...
The Youth Wellness Quest: A Comprehensive Online Mental Health Literacy and Self-Advocacy Resource Developed by Youth for Youth
Asavari Syanp*, Janice Y. Lamp*, Lisa D. Hawke, Karleigh Darnay and Joanna Hen...
The Retinoblastoma Research Booklet: A Catalyst for Patient Involvement in Retinoblastoma Research
Ivana RistevskiP, Jay KiewP, Mitch HendryP, Michelle PrunierPR...
Partnering with Patients to Enhance Access to Kidney Transplantation and Living Kidney Donation
Kyla L. Naylor*, Susan Q. McKenzie*P, Amit X. Garg, Seychelle Yohanna and Jessica M. Sont...
Building a Platform for Meaningful Patient Partnership to Accelerate “Bench-to-Bedside” Translation of Promising New Therapies
Grace Fox, Dean A. Fergusson, Madison Foster, Terry HawryshP, Stefany DupontP,...
Patient Engagement in a Multi-Stakeholder Workshop to Plan the Collection of Patient-Oriented Outcomes for Children with Inherited Metabolic Diseases
Kylie Tingley, Maureen SmithP, Nicole PalloneP, Pranesh Chakraborty and Beth K...